U.S. Education Department Says ABA Is Not the Only Treatment for Children With ASD. CMS Agrees.
Here is what you can do to advocate for speech-language pathology treatment.
The United States Department of Education (ED) issued a guidance letter clarifying the roles of providers and the importance of coordinated delivery of services for children with autism spectrum disorder (ASD). The letter noted that school and early intervention programs should not rely on a single treatment method for children with ASD, such as applied behavioral analysis (ABA), and should include speech-language pathologists and other professionals in all decisions regarding evaluation and treatment. This follows extensive advocacy efforts from ASHA on behalf of members and state leaders concerned about the lack of consistent procedures pursuant to IDEA in the assessment and treatment of children with ASD.
There is a similar trend in health care to utilize only ABA specialists to provide care for children with ASD. Singling out ABA services in legislation, such as in mandates and payer policies, as the only treatment for individuals with developmental disabilities, including those with ASD, does not provide the full complement of appropriate treatments, and limits consumer choice. Legislators, payers, and policy makers at local, state, and federal levels should work to ensure that all therapies, not just ABA services, are included for coverage. CMS issued guidance on this topic in July 2014 stating, "While much of the current national discussion focuses on one particular treatment modality called applied behavioral analysis (ABA), there are other recognized and emerging treatment modalities for children with ASD." Clearly, CMS supports the full complement of services for individuals with autism, as does the U.S. Department of Education.
While this direct guidance is important for ASHA members and consumers, it is only helpful if all of us endeavor to get the "word out" to decision makers at the state level, in school districts, Part C early intervention programs, Medicaid programs, legislatures, and health plans. So please review the letter and share it with decision makers in your work setting.
Actions to Take
In Schools and Early Intervention...
In the Community...
Speak with parent groups and local community disability organizations about the importance of a comprehensive evaluation and treatment program (IFSP/IEP), what services speech-language pathology services provide to children with ASD, and how services can be coordinated to provide maximum benefit for children.
Communicate with pediatricians and primary care physicians about the role SLPs play in treating individuals with ASD, and how ED and CMS guidance supports that role.
In health and private settings...
Communicate with local Medicaid and department of health representatives about the CMS policy and ED letter.
Communicate with health plan representatives and regulators about how the CMS policy and USDOE letter can and should influence payer policies.
State legislators and regulators...
Meet with legislators to discuss how the CMS policy and ED letter can influence state and payer policies.
Communicate with state insurance regulators about ACA Marketplace exchange plans that require habilitation services, such as speech-language treatment, and how individuals with ASD, who make up a subset of the population with developmental disabilities, may need habilitative services, as well as behavioral treatments, such as ABA.
SLPs are uniquely qualified to provide assessment and treatment of communication disorders for children with ASD, including social communication disorders.
Under IDEA Part B, a Free and Appropriate Public Education (FAPE) must be available to all students with disabilities under the law; allowing ABA therapists to dictate services is a violation of the law.
IDEA requires that decisions about services must be made by a full complement of appropriate qualified providers following a comprehensive evaluation.
IDEA's IEP and IFSP processes are designed to ensure that an appropriate program is developed to meet the unique individual needs of a child with a disability, and that services are identified based on the unique needs of the child by a team. An ABA therapist may serve on the team, but is not the sole decision maker and cannot restrict access to services by other team members, such as SLPs. No one treatment (including ABA) is appropriate for all individuals with ASD or other developmental disabilities.
Regarding Medicaid coverage, CMS recognizes that there are other treatments for children with ASD besides ABA, and that CMS, too, supports the full complement of appropriate services.
Articulation and Phonology
Augmentative and Alternative Communication
Child Language Development & Disorders
Fluency and Fluency Disorders
Literacy, Language & Learning
Swallowing & Swallowing Disorders
Voice & Voice Disorders
Nebraska Medicaid Resources
Expand Your SCOPE is a free national program for SLPs who are already certified, but want additional mentoring and shadowing opportunities in order to improve the quality, depth, breath, consistency, and continuity of the care they provide is available. Change the culture of continuing education for SLPs across the country - making lifelong mentoring and shadowing the norm instead of the exception. This will help align the SLP field closer to the models in other educational and healthcare professions, increase clinician confidence and competence, as well as improve flexibility for SLPs moving between specialties and settings.
Madonna and UNMC are co-sponsoring the 2018 Integrative Medicine Conference with featured speaker Dr. Terry Wahls on September 28, 2018 in Omaha. Dr. Wahls is the author of "The Wahls Protocol: How I Beat Progressive MS Using Paleo Principles".
Connect with audiologists, speech-language pathologists and students; implement new ideas and practices learned during education sessions in tracks for audiologists, speech-language pathologists and students; recognize the accomplishments of your peers; and receive an update on how your state association is advocating for and serving you.
NSLHA's vision is to be the leading voice and partner in promoting speech, language, hearing, balance, swallowing and related disorders in Nebraska, and to be an expert in advocating for the rights and interests of persons with communication disorders. Join or renew your membership today.
A major role that state associations play is as an advocacy organization. Associations monitor proposed legislation, identify bills that may have a positive or negative impact on the field of communication sciences and disorders and the individuals we serve, and develop advocacy agendas to address those bills. A large unified voice such as a state association can be key to successful advocacy.